Thursday, May 24, 2007

The Arrogance Of Good Health


See, it's like this. 1977 was a good year. I started college and loved it. I had many interesting adventures and the whole world was at my feet, ready for me to conquer it.

1987 was a great year! I was living in my beloved New York City, and walking city streets holding hands with the Love Of My Life, who dumped me in 1988, but let's not go there right now.

1997 sucked. Our first baby (Nikki-Husky/German Shepherd mix) died on Roger's birthday, then I went through grisly fertility treatment without any success, and my father died suddenly on August 1, 1997. I was sort of dreading 2007, but only in a vague sort of don't-be-ridiculous superstitious way.

2007 has caused me to lose the tiny shred of hope and innocence that I had left after weathering the life blows that we all go through. Nothing big, ya know, a few broken hearts, a few failed career dreams, a few wrenching deaths. But I always had one thing.

Health!

Radiant, wonderful health! Years would pass without a doctor's visit. I think I went 5 years without going to the doctor in my 20s back when I had no health insurance. Oh, there were minor annoyances, but I was always able to keep going.

This year has broken me.

On Jan 8, 2007, three weeks after my hysterectomy, I collapsed on the floor of my office with racking muscle spasms and joint pain due to lack of estrogen, due to lack of ovaries. I have been on HRT (Hormone Replacement Therapy) continuously, but, come close. No. Closer. Let me whisper something in your ear.

it doesn't always work well and 10-20% of women do not respond to the traditional methods.....and I'm one of those lucky few!

So far I've tried: Tri-Est (2 different doses), Vivelle Dot patch (different doses), topical progesterone, topical testosterone, and Premarin.

I have tried the following pain pills: Tramadol, Naproxen. Muscle relaxers: Xanaflex & Klonapin. I opened the bottle of narcotic pain pills (Talwin) that I didn't even need after major surgery removing three organs at times to try to relieve the racking bone and muscle pain, and they don't even work all that well.

I have visited a homeopath, a chiropractor, an acupuncturist, and a Reiki practitioner. I take 20 supplements every day. I can't eat and I have lost 12 pounds. Two weeks ago, I wore a dress to Madeleine's First Communion that I haven't been able to fit into for twenty-two years. (Our family saves clothes--I wear my mom's cashmere coat from 1950 often and I have several sweaters from college that still look good. I don't know what they're made of--something that NASA might be interested in I guess.)

I am on disability leave from my job right now. Two weeks ago, I could barely walk.

Last Saturday, my friend Denee Frazer was spending her last day on earth before succumbing to ovarian cancer. Denee's health crisis may have saved my life, as my ovaries are now in some biodisposable waste dump. I've certainly had moments when I wished I was headed towards heaven, but I have two children to raise and a husband who claims that he'd miss me. So ok, I'm stuck here.

I was doing something different. I dragged my frail, mortal, but fixable (I hope) body to a new doctor, Jandrette Rhoe, who has impressed me with her wonderful sunny personality and bedside manner par excellence. She inserted the Last Resort--hormone pellets. They are supposed to work when nothing else does. I have 1 testosterone and 1 estrogen pellet.

You can find out more about the pellets at www.sottopelletherapy.com and see if there is a doctor located near you at this website: http://www.sottopelletherapy.com/physiciansmap.htm

So far, I'm still having pain, but my energy is slowly, slowly returning. I hope this will be the turning point in my health. I have been able to take long walks for 2 nights in a row now.

So, that's what's up with me. And that is why I haven't been updating regularly.

I have lost the innocent, wonderful arrogance that I once had. Sickness? Happens to other people who don't take care of themselves. Chronic pain? Totally controllable with pain pills. Me as a sick person? Saintly, patient and noble. (Try whiny, teary, cranky, and withdrawn).

I hope that I will arise from this a better person, one who is able to truly appreciate a day without tears, pain and exhaustion. But right now I'd settle for still being my rotten self without tears, pain and exhaustion.

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34 comments:

figlet said...

Oh no! NO! God I hope this all becomes just a distant memory for you soon. You know, where you'll wonder "Did I REALLY feel that awful?" Crap. I'm wishing you renewed vim, vigor and snark. Pronto.

J said...

I've missed hearing from you. I'm hoping you're on the mend and sending best wishes your way.

OmegaMom said...

Oh, man. I am so sorry to hear all that! Here's hoping the pellets help for good. Damned hormones. Like the others, I've been wondering what's up with you...take care.

Alpa said...

sending you good wishes and good vibes for better health...get well soon.......

pithydithy said...

Oh, hon, this is awful! I'm hoping that the pelets work and that you're on the mend.

Amber said...

Hope you get to feeling better soon.

Debberoo said...

Wishing you well!

Leggy said...

Ugh- how awful. I hope you feel better soon.

Beverly said...

So sorry to hear your health is not up to par. Hope this works. Women's hormones are really very interesting and obiviously painful when they don't work right.

Beverly

midlife mommy said...

I hope that this is a turning point for you too. Sorry to hear that things have been going so badly.

Marie said...

Oh my gosh--I have a friend undergoing something similarly traumatic right now, but as a result of a car accident that has left her in chronic pain and other ruin. I'm learning that health is as much luck as anything else. I'm so sorry that you have been suffering so.

Just wishing you some relief and returning health asap. We're thinking about you.

Love, Marie

Donna said...

Oh gosh... I'm sooooo sorry. Really, I really REALLY am. I wish I knew why this journey is so much harder for some of us that others.

My heart and my hand of friendship is always extended to you.

Donna
Our blog: Double Happiness!

Shannon said...

That sux so bad! Can someone just figure out how a woman's body works already? I'm sorry you're going through this. I really enjoy your bloggin' and hope you're on the mend.

carosgram said...

I just hope you arise from this without pain and with energy. Thanks for sharing. I was wondering why you weren't posting more often.

Stephanie said...

Wow, you've been going through an awful lot. I'm so sorry. Living with pain is a terrible burden to bear. I'll keep my fingers crossed that the pellet therapy helps.

Alyson & Ford said...

We are so sorry about your pain and suffering this year! Hope you are on your way back to good health.
I hate to say it, (I know I am in denial) that at my age I am going through some terrible pain due to hormones but it comes and goes. I have missed work which I used to never do. I am hoping my transition to menopause will be gradual and not so debilitating.

Alyson

Perrin said...

Oh I am so sorry you are going through this. I hope the new supplement works and this will be a distant memory soon.

Thinking good thoughts for you and your health!

ina said...

Loving your rotten self & wishing you well. xo

Miss Cellania said...

I'm so sorry Lorrie, that just sucks and blows at the same time.I'm glad you've found a doc willing to try anything, and I'm double glad you have health insurance.

Sara said...

I'm so sorry, Lorrie. Living with chronic pain is just awful. I hope that the pellets work, and that you're back to your rotten (lovable) self soon.

Anonymous said...

I'm sorry you haven't been well. I hope you will get back to good health soon.
Take care, Lin

Anonymous said...

Have missed you at another site, and decided to check the blog. Sorry to hear things are rough, but glad you found a doctor you like. Hope all goes well for you. Give 'em hell.

(PMS) Lisa

Heza Hekele said...

Sorry to hear you have been so sick.

You'll pull through...if you believe that you will! A good attitude can be stronger than any medicine ever invented! (Not advocating not taking the medicine here...take everything that works!) Just saying that the mind is a powerful thing...if you believe you are getting better, it's much, much more likely to happen!

Wishing you the best!

Desiree said...

Hope this works, we miss you over at PMS!! Sorry about the crappy time you are having.

~Desiree

carrie said...

Hope you feel better soon with loads of energy!

Journeywoman said...

I'm so sorry.

I'm hoping you feel better soon.

LilySea said...

Putting you on the prayer list.
I hope the new treatment works better and better.
And sorry, but I'm glad you're not headed to heaven just yet!

Donna & Andrew said...

Hope you feel better soon!

Donna said...

F, f, f-ity, f, f, f! (Can I say that here?) I hope this new treatment works and you are feeling better soon. I miss your writing! It's hard to be snarky when you're in pain! And what the heck is with so many of your readers being named Donna?

Cindy from central NC said...

I'm so sorry. It is truly so very very difficult to feel lousy and in pain day after day after day ...I've been in that place before with a serious health situation (for over 2 years) and perhaps understand a bit how you may be feeling. For me, it was just downright scary and pretty dark times. I got through it (with a ton of medical options and support and love) but it changed me irrevocably...ah, you said it well -- the "arrogance" of health.
I so hope for you better health. You are smart and resourceful and sound like you are absolutely taking control of your situation...Best of luck to you...Sending good vibes your way.
-Cindy

Sandra said...

Lorrie, I had no idea. I hope you feel better soon.

Wendy said...

There is nothing more depressing, debilitating, frustrating, and exhausting the chronic pain. I applaud you for each morning you have gotten out of bed, for each task you managed to get done. Your body at time might feel like is has given up on you but thankfully you have NOT given up on it. I truly hope this treatment is what works for you and soon you will feel your old self. I hope you have a better day today and the rest of the week.

Anonymous said...

Thanks so much for sharing! I have read about your journey on another website. I too am suffering the same debilitating pain that the doctors are labeling "fibromyalgia". I just think that is a blanket term. I had my ovaries removed and a hysterectomy two years ago at 33 years of age. No hrt or any other drug has relieved this nightmare yet and I am learning about pellets. I will check out the website. Thanks again!

theghelertertwins.blogspot.com said...

I don't even know what to say other than you are so right. We do take our health for granted. I do hope you are on the mend soon and feeling like yourself again very soon.

Hugs. Rony